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The Importance of Connecting Patients with Clinical Trials in Cancer Research

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Clinical Trials are at the heart of medical research and are critical to finding new paths to prevent, detect and advance new treatment methods and medications for debilitating diseases. Patients with an illness or disease participate in Clinical Trials in order to receive the benefits of the newest treatment options for recovering from their disease and to offer the best opportunity for researchers to find better treatments for others in the future. Treatments may involve new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments. The goal of clinical trials is to determine if a new test or treatment works and is safe and may also investigate other aspects of patient care, such as improving the quality of life for people with chronic illnesses.

Providing information to patients, who have been diagnosed with a serious disease, about the specifics and availability of important Trials that may be of benefit to them is proving to be challenging.  ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants being conducted around the world and currently lists 247,989 studies with locations in all 50 States and in 201 countries. But accessing, understanding and utilizing this important data can be difficult and challenging for the average patient undergoing the emotional and physical experience of a recent diagnosis.

Former FDA commissioner Dr. Robert Califf recently delivered a talk, “Finding the Right Balance in Learning about Therapies”, at a conference in New York City. In his address he said, “Our country is experiencing an unprecedented divergence of health outcomes that mirrors gaps in wealth and education…wealthy, highly educated people are benefiting from information that allows them to lead longer, more functional lives, while others are suffering. The clinical trials enterprise has gone awry,” he said. “It’s become unnecessarily expensive, cumbersome and arcane” In his opinion the system has become so costly and onerous that most of the important questions go unasked. “Doctors are heavily conflicted between patients and the institutions they work for,” says Dr. Robert. “The rosy view that doctors and patients are discussing all options and making the best decisions flies in the face of all evidence.”

The research and pharma industry is attempting to create new pathways to connect patients with the data and, most importantly, help them understand which clinical trial is best for their particular disease. The “Innovation and Clinical Trial Tracking Factbook 2017”, is an Assessment of the Pharmaceutical Pipeline listing the thousands of new drugs currently under trial across the U.S. and around the world. VitalTrax taps into a global database of clinical trials and ultimately organizes the complex web of information into a platform that allows patients, physicians, caregivers, and families to search for relevant trials in relevant locations – in a language they can understand.

Zikria Syed, CEO of VitalTrax says his company is taking an “Open Table” approach to enrolling patients in clinical trials. “We’re making a big bet on the fact that patients would appreciate tools that put the information, and an ability to learn about clinical trials and enroll, in their own hands.”

In smaller communities around the country local oncology providers are shortening the gap of distance and time for patients seeking the benefits of clinical trials. At the Gettysburg Cancer Center (GCC), Clinical Trials are available to patients who want to participate in this important process. The localized opportunity voids the often long drive to large regional healthcare centers for Trial participants and enhances the patients understanding of the technical and practical elements of the process in a personalized but highly qualified environment.

GCC, a leader in Oncology Care across the Central Pennsylvania region since 1989, is actively involved in providing the latest in clinical trials to their patients throughout their community.

Cancer Diagnosis: A Second Opinion Can Often Lead to the Best Treatment Plan

Most of us would not consider making a major modification to our home without consulting a number of professionals or contractors. After all, getting more than one perspective on the scope of work can reveal a clear understanding of the costs, the potential inconveniences of the process, better prepare for the complexities of the work and more clearly define our expectations. Few of us would argue against the benefits of investing the time and patience in getting a second opinion.

Research shows that half of the patients diagnosed with serious illnesses such as cancer, never seek a second opinion before embarking on a series of treatments for a sometimes life threatening disease. The data reflects that only three percent considered a second opinion to be essential before accepting a diagnosis or course of action. Considering complexities of cancer and the importance of selecting the right course of action for each specific type, it is not just a good idea to initiate a second opinion, it is imperative to understanding all your options and establishing confidence in your final decision. Such important health decisions should be made only after you have learned all you can about your diagnosis, prognosis, available and treatment options.

Several reasons why so many fail to seek a second opinion can be easily explained. A cancer diagnosis is scary; and many patients feel a need to act immediately on a course of treatment to have the best chance of survival. But while in some cases taking immediate action is imperative, most cancer patients have time to learn all there is about their disease before setting out on the treatment journey. Others feel a sense of unquestioned confidence in their personal physician’s ability to diagnose and treat their condition. They often feel that questioning their results could be seen as an insult to their doctor.

Medicine is not an exact science. Even new advancements in treatment options, even the most dedicated and conscientious of practitioners cannot be expected to have the latest science at their fingertips. Many doctors are not only very comfortable with their patients seeking a second opinion, most routinely recommend the action. The results of  “a 2006 study found that when breast cancer patients came to a specialty center for a second opinion, recommendations for surgery changed for more than half, a result of different interpretations and readings of mammograms and biopsy results.”

After Greg Walde received an initial oncology evaluation and treatment at a local oncology center in Gettysburg, Pennsylvania he was told, that due to the advanced stage of his disease, he had little time to live. He was informed that there simply were no effective treatment options for his advanced stage of cancer. The disease, he was informed, had just progressed too far. “At that point,” Greg says, “I went home, very down about things”. After several weeks of distress and depression over his situation he decided to seek another opinion at The Gettysburg Cancer Center just down the street from where he had previously received the bad news. In Greg’s case the value of a second opinion included new treatment options and more time at living his life.

When faced with a cancer diagnosis it becomes critical to find the right oncology center with the experience and dedication to provide the latest and most appropriate medical treatment and support available to fight the battle. At his Gettysburg Cancer Center in Gettysburg, PA, Dr. Satish Shah, Medical Oncologist/Hematologist says, “We understand that every person is unique. Our team is dedicated to providing the latest approaches to treatment in a caring environment for patients and their families to insure the best possible outcome for their cancer treatment.”

For more information on the Gettysburg Cancer Center, visit www.gettysburgcancercenter.com.

The Value of a Second Opinion Provides Alternative Treatment to a Cancer Patient

When faced with a cancer diagnosis, it becomes critical to find the right oncology center that will provide the appropriate medical treatment and emotion support to fight the battle. One Gettysburg resident, when faced with a stage-4 cancer diagnosis, found the right support at Gettysburg Cancer Center (GCC), a growing comprehensive cancer center.

Greg Wale received an initial oncology evaluation and treatment at another local oncology center in Gettysburg, Pennsylvania. The diagnosis showed that cancerous tumors had grown to 4 and 5 inches in diameter and had migrated to the liver, bone, thyroid glands and colon. Greg was just 57 year’s old and was told by oncologists that he had little time to live. There simply were no treatment options for his advanced stage of cancer. The disease, he was informed, had just progressed too far.

“At that point,” Greg says, “I went home, very down about things”. After several weeks of distress and depression over the state of his situation, he drew upon his faith and was “spiritually lead” to the Gettysburg Cancer Center (GCC), just down the block from where he had previously received the bad news. It was here that the centers principle oncologist, Dr. Shah, sat down with Greg to review his case. “I felt very comfortable here where there was a lot of very concerned people with caring hearts,” recounts Greg.

He immediately felt the staff at GCC wanted to help and he sensed that things were going to be different in this place where everyone seemed like family. Dr. Shah and his expert team designed a plan to attack his disease and provide as much time as possible for Greg’s future. With no guarantees, the team embarked upon an individualized course of treatment. After a couple of months, new tests revealed that the progression of the disease appeared to be slowing. According to Greg, “None of us knows how much time we have but it looks like I’m going to have more of it than what was told to me when I was first diagnosed thanks to Dr. Shah and this facility.”

For more than 25 years, Gettysburg Cancer Center has been committed to providing cancer care in a community-based setting close to home. The all-encompassing oncology and hematology programs provide a complete range of diagnosis and treatment. “Here at Gettysburg Cancer Center we understand that each patient and their disease are unique, requiring different approaches to insure the best possible outcome for each patient. Our family of caring and educated staff strives to provide insightful, compassionate care to all of our patients.” says Dr. Shah.

In this case, the value of a second opinion meant a new treatment option and more time for this cancer patient. To view the full patient testimonial: https://www.youtube.com/watch?v=448eg4F_SEg&feature=youtu.be.